Parents of ADHD Children
At a loss with twice gifted child.
I’m new to ADDConnect and after browsing the site, i’m not sure why i’ve waited so long!
I have a son who is 11 1/2 years old and has ADD, as well as anxiety and some mild sensory issues. He is also gifted.
I believe the term for him is “twice-gifted” child.
Anyway, he was diagnosed in 1st grade. Because he’s a little guy, and doesn’t weigh much, we waited before medicating him. When we started, we went to non-stimulants first.
We tried Strattera, which made him sad, sullen and depressed so we stopped. We then tried Intuniv. It didn’t do a whole lot at all, so we stopped. By 4th grade, we decided to start stimulants. We tried Ritalin, Concerta and Vyvanse I believe, and they either didn’t work or he had major rage issues as side effects (he’s a very calm, well-behaved, sweet boy usually!) so we stopped all of these. By then, we were in 5th grade and his psychiatrist suggest an off-label medication for him, that is usually prescribed for Parkinson’s called Amantadine. It helped a little but then my son started hearing voices one day and per the doctor, it was a side effect of that medication, so once again we stopped.
The problem is that at home, he doesn’t need to be on medications, he’s totally fine, but once he needs to concentrate for homework or when he’s at school, it’s a disaster. We set up a 504 for him but i have to tell you that with 6th grade coming up in a month, i’m scared. I know his schoolwork takes a turn for the worse when he is not medicated and can’t focus, but all the meds we have tried so far have had major side effects on him. It got so bad that this past Christmas, I had an 11yr old son who came to me to tell me he wanted to die. I’m not sure what to do. Part of me wishes we had a medication for him that worked, because he himself feels self-conscious when he can’t focus at school and hates feeling “different” and part of me hates thta nothign has worked and he became sad and suicidal. Since he’s bene off all meds, his modd is fantastic, he’s happy and joyful and fine (then again, it’s summer vacation, so that helps! lol)
Also, school is so hard for him due to his innatention that he now hates it. I want him to enjoy it enough that he’ll want to go to college.
I forgot to mention that he was tested and found that his IQ is above normal, in the 135 range, but yet he score very low with his processing speed (he scored 85) and that makes sense since his biggest issues at school is putting on paper what he’s trying to say. If he was to dictate, he’d be fine, but writing what his thoughts are, is impossible. he takes 30mns to start and never finishes.
ANyway, i’m done rambling, i’m hoping to either find people who have a child with common symptoms or someone with a similar experience than mine.
Any thoughts, suggestions or help will be highly and greatly appreciated!
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