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Parents of ADHD Children

DMDD - Many concerns and questions
Keywords:


Hi all
We received the diagnosis of DMDD for our 5-yr old son that feels wrong on a gut-level. We know he has sensory issues though this doc didn’t pay much importance to it. He’s super bright, chatty hyperactive and impulsive. His dad has ADD so we expected the same.

After doing lots of research
1. the criteria for the dx sounds nothing like our son
2. it’s divisive among the healthcare community whether DMDD is actually real.

And now we owe a shit ton of money

Have any of you been through this and outside of getting a second opinion (which we will) is there any way to get some or all of our money back? The doctor was cold and dropped a bomb on us with this non-treatable, controversial, seemingly severe diagnosis.

Feeling pretty blue and frustrated

Replies

I have never heard of this diagnosis so I looked it up.  Your son is five and some of the symptoms need to be present at six or later and be in place for a year.  Get another opinion.  Good luck.

Posted by Natalie K. on Apr 17, 2017 at 9:52pm

While there has been debate about DMDD (Disruptive Mood Dysregulation Disorder), it is included as a diagnosis in the latest (2013) “Diagnostic and Statistical Manual of Mental Disorders” (DSM-V): https://www.nimh.nih.gov/health/topics/disruptive-mood-dysregulation-disorder-dmdd/disruptive-mood-dysregulation-disorder.shtml.

I am a firm believer in following your Momma Intuition. If DMDD doesn’t seem to fit, seek a 2nd opinion.

As for getting a refund from this doctor, I doubt that will happen. I would point out to him/her that the DSM-V (really, the Bible of diagnosing mental health problems) says you cannot diagnosed DMDD under age 6, so you feel giving that diagnosis to your child is reckless.

The doctor that diagnosed my son with ADHD didn’t pay any credence to sensory issues either. And Sensory Processing Disorder (SPD) isn’t a documented diagnosis, still (https://www.additudemag.com/is-your-child-out-of-sync/). Your best bet on sensory issues is to have an evaluation by a pediatric occupational therapist.

Penny
ADDconnect Moderator, Author & Mentor on Parenting ADHD, Mom to teen w/ ADHD, LDs, and autism

Posted by adhdmomma on Apr 18, 2017 at 1:25pm

Well, after writing the doctor that did the evaluation my concerns, she has decided that there will be no definitive diagnosis and will instead note potential diagnostic domains to be monitored and investigated in the future. Sucks that I had to fight for this, but it just wasn’t accurate. On to better doctors

Posted by CaraB on Apr 18, 2017 at 5:22pm

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