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Daytrana Patch Users....

We are having trouble finding a stimulant medication that we can administer in a high enough dose to address my 8yo daughter’s ADHD symptoms without increasing agitation and irritability.  We’ve tried Vyvanse and Focalin (one from each group of stimulants) and she can tolerate very low doses, but they are not addressing the symptoms.  When we raise the dose she becomes unbearably agitated, irritable, and aggressive (not just during rebound time).

So we are wondering about the patch.  I’ve read that is is absorbed differently…does that mean it is metabolized differently?  Ever heard of cases in which oral stimulant meds did not help, but the patch was different? 

Patch users, please share your stories.

Replies

My son was on focolin and we changed him to Daytrana with great success.  There are very few rebound affects if any and I think that is only due to what is going on at that time (homework, activities, etc.).  10mg is the lowest so you would have to discuss with your doctor if that is okay. My son was about 9 or 10 when he began and he is 14 now and on 15 mg.  The only issue is that the skin becomes sensitive so make sure you switch sides when applying the patch and put lotion on if it gets red.  If you do give her Daytrana, go to the sight as they have coupons which help defray the expensive costs.  Good luck!

Posted by deerfield99 on Jan 28, 2014 at 11:29pm

My 8 year old is on the daytrana patch. He was on focalin with similar results as your daughter. He is now on 20 mg weekdays and 15 mg on weekends, his psychiatrist added 1 mg of intuniv at night which helps the rebound.

In the summer, we put a water proof bandaid over it and it stays on when he swims or sweats. Occasionally he will be red when he takes the patch off, but that does not always happen.

My son metabolizes the patch slowly, so on school days he takes 5 mg of the fast acting Ritalin. That wears off around the time the patch kicks in.

Posted by cmullen17 on Jan 29, 2014 at 4:53am

We started the Daytrona patch a month ago, and I LOVE IT!! For the first time ever, my son sat down and put together a puzzle without any prompting to do so. He said he just wanted to do it and so he did it. No more dosing in the middle of the day, and best of all, the meds leave the system gradually son there’s little if any late afternoon crash. There are a few side effects the most noticeable is irritation at the site of administration, but that has gone away over time. 

That is what I think of the Daytrona patch. I hope you get to try it and it works as well for your daughter as it has for my son.

Good Luck!!
Susan in PC, OH

Posted by SueH on Jan 29, 2014 at 8:42pm

Hi CBak!

My son is also very sensitive to meds and grows a tolerance quickly as well (what a tough combination). We tried the patch for a while and I loved the symptom control, when it was working. Our problem was that it took 4 hours to take effect every day. We tried a short-acting stimulant in the mornings to fill that gap, but my son cannot tolerate short-acting meds at all. So, we had to move on from the patch. We had a great experience other than the length of time it took to take effect and a little skin irritation.

In our quest to overcome all my son’s medication issues, we switched to Qullivant in 2013. It has been the best of all the stimulants (yes, over the last 5 years, he has tried them all). Quillivant seems to have a gentler time-release mechanism and he can be more himself but still have great symptom control (so great that his IEP team has decided to use it as ammunition to remove his services at school).

It’s a long road when you have a sensitive kid, but keep working at it and you will eventually discover what is best for your child.

Penny
ADDconnect Moderator & Mom to Tween Boy with ADHD and LDs

Posted by adhdmomma on Jan 29, 2014 at 9:05pm

Love the patch!! My son has been on it for a few years now. He is 10 years old and on 40mg a day ( 2 patches per day). It does take 2 hours to kick in and we use to use 5 mg of methanfenadyte ( sorry about spelling). My son’s back does get red but we put lotion on and it doesn’t bother him.

Good luck!

Posted by Tre on Jan 30, 2014 at 2:39am

To answer the question about metabolism, there are benefits, ie there are no food interactions and digestive issues, but I don’t think it feels very different from other methylphenidate systems.

I am a youngish adult and have been on and off Daytrana (largely because it is so hard to find and took 3 months to have an order come in at my pharmacy)...switching with Focalin and Adderall.

When it works (you haven’t built a tolerance) it is pretty good, but you have to be conscious of its linearly increasing pharmacokinetic profile. This means that it continues to build up in the body as the day goes on, unlike, say, concerta, which has an ascending, then descending profile. With Daytrana, the dose keeps increasing - which means it starts out very slow and takes hours to be effective at all, gets quite effective, and then you become overdosed, which causes anxiety, agitation and even anger. I can’t keep it on more than 8 hours before I feel this way. It is not a steady release mechanism, so keep this in mind!

I am very unallergic, so I don’t have any skin problems.

Posted by Squirmyboy on Feb 25, 2014 at 2:27am

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