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Problems with meds

Hello, I’m Jeff, 25yrs old, I was diagnosed ADD when i was kid. (3rd grade) At the time i remember they had me on Ritalin, but can’t recall the dose, but i do remember it was the highest dose for my age bracket. By the 5th grade, I didn’t like how the meds made me feel; They made me a “zombie”, so I told my mom i didn’t want to be on it any longer, and she took me off. I never even thought about my ADD until this last year.

Ive gone all these years un-medicated and under the assumption that ADD went away with age. Then one day at work, it kind of dawned on me, that not only did I still have ADD, but either I had been ignoring it all these years and just took notice, or something changed with my brain chemestry and the ADD is back and REALLY strong.

First thing I did was take a visit to the local clinic. Unfortunatly I’ve struggled most of my life financially, and extra money is never really available so things are always tight, so I’ve always been stuck with the “cheap way out” on a regular basis even though cheap isn’t always the best option. Anyway, So I went down to the clinic and they set me up with another doctor that wasn’t my regular. I explained my situation about being diagnosed as a kid, struggling as much as i was at work, and that i had an interview coming up with a very good paying job and my ADD “tendencies” were a high concern with me. He recommended “behavioral theropy” rather than drugs.
I turned around and made a follow up appoinment with my regular doctor at the clinic.

When I was at my second appointment, she immediatly addressed my concerns, had me fill out a couple questionair forms, even spoke to my mom via phone to verify my diagnosis. She then put me on 20mg (1pill) of Ritalin every work day before work. I went to the local pharmacy thinking i would pick it up for the regular $4 that most the meds are when you fill it with a card provided from the clinic for discount meds, only to find out that our WONDERFULL (wonderfull being used very loosely) government just passed a new law stating that no form of discount can be used towards “controlled substances” which Ritalin is considered a controlled substance.

That one month supply cost me roughly 75 bucks that i didn’t have becuase bills for my family are a little more important. But none the less, found the extra funds and was able to fill the perscription. Next day, started takin my meds… no change in behavior what so ever. I figured “Oh, well it must take a couple weeks to work into your system…” finished out the month and made it to my next schedualed doctor appointment. Informed her that i noticed no change at all on the meds. she then consulted a little medicin book, and proceeded to double my dose. instead of 20mg, she stepped it up to taking 2 20mg pills before work. I still had some left over from the last month, so I started doubling the dose as instructed, and I still didnt notice any change even after 40mg of Ritalin.

I took the perscription back to the pharmacy where they told me my perscription is going to run over $150… OVER $150!?!?!?

That was about 6months ago, and I have yet to fill the perscription just for the simple fact that, i can’t afford it. If she had me on 40mg and it still didnt have an effect on me, then how much will it cost me to get how ever much i need? So now I’m back to just dealing with my ADD w/o meds.

Has anyone delt with anything like this before?

Replies

That’s weird. Maybe Ritalin doesn’t work for you. If there’s any way to see a psychiatrist, maybe s/he would be more knowledgeable about different drugs that might work for you. I take a generic for Adderall, 20 mg twice a day, and it costs me about $45 for a 90-day supply.

Posted by pnwsuzie on Dec 26, 2013 at 8:25am

well the thing I find really wierd… its like my ADD comes in waves… theres times when i can focus, concentrate, have a photodetic memory, remember every single little tiny detail, hell I used to wait tables in a bar and i could take a full dinner and drink order from an 8-top table and never right it down… but then when my ADD kicks in, its very dominent, forgetfull, attention span of a knat, unable to focus, have to ask to repeat directions, constantly interupt even if instructions are being givin… and it creates bad scenarios for me at work… im tired of going job to job, i want to be able to find the job i like and retire with it, rather than quit or get fired by 1yr

Posted by Stebs on Dec 26, 2013 at 8:39am

ADD that comes and goes?  That is interesting.  Are you convinced of the diagnosis?

Posted by whizinc on Dec 26, 2013 at 10:25am

yes i am, what Im unsure of is how to deal with it… my ADD does come in waves, but i experience the symptoms more than i dont… in school i would always doodle a small little picture becuase i was off in my own little world, but me turning my focus away from class would channel into my picture and it would go from just a simple doodle, to a complete 8x11 picture full of detail… i can sit down and do a 1000pc puzzle in 2 nights working on it after work… someone with ADD cant sit and focus, and yet im able to but only with certain scenarios… growing up my mom would always have to give me short lists of things to do cuz otherwise id forget or get side tracked on something else… hell even the way i clean house. i start cleaning in the living room, see something that needs put up in the kitchen, see that the dishes need put up so i start putting away the dishes, one dish goes by the trash can and i see the trash needs takin out, so i take the trash out, come back in looking for a place to start and some closthes need takin to the room, so i take it to the room, see theres a piece of trash so i go throw it away, i see something that needs put up in the living room, so i put it in the living room and basicly repeat the process basicly cleaning in circles until the whole house is done…

Posted by Stebs on Dec 26, 2013 at 10:44am

i get frustrated becuase i can never complete a task, im always so ambitious to start it, but half way thru lose interest or get side tracked on something else, i try my best to cope with it by trying to be as organized as possible, but no matter how much i organize, im still disorganized… i often make things 10 times more complicated than it has to be mainly for the simple fact that it helps me understand or comprehend better

Posted by Stebs on Dec 26, 2013 at 10:46am

im actually a really smart person, but theres alot of times that my ADD makes me feel stupid or inferior

Posted by Stebs on Dec 26, 2013 at 10:47am

i can even be explaining something to somebody, and halfway through my mind will get sidetracked on somethin totally different, and lose track of what i was even talking about and end up rambling until i can find a way to come back to what i was originally talking about… that or ill have a series of points im gna bring up We’ll say to my boss for example) and when i go to talk to him, i cant remember what they were, or only remember a couple, and find a way to make them seem worse than they are just to make up for the ones i dont remember, wich later remember but by that time the boss ahs made his decision so anything i say is basicly mute… i often get accused by my employers that i do what i want regardless of what anyone says. where as i feel like i do things the way that things work for me and suits me so i can do the good job i need to do

Posted by Stebs on Dec 26, 2013 at 10:53am

Hey Stebs, what you need to do is go to a different pharmacy, each store has different generic drugs even if they are by the same brand (trust me on this, others will disagree) some may be older or just junk pills that don’t work.  Example: I used CVS, Wallmart, Walgreens, these sell junk products.  Then I tried Brooks and Rite Aid and BAMM felt my meds within minutes and was off the sofa and getting back to life again.  Had energy, brain was working and focusing like never before, brain fog gone.  Ritalin is a good drug but has a terrible die off when it wears off.  I started on Ritalin and went to Adderall which works much better for me, just get instant release because the extended release didn’t work at all for me and I paid about $400 for the name brand product, turns out people at the pharmacy or wherever open up the plastic pills and replace the inside beads with sugar beads or something, you can google that, its a fact.  Of course not all stores, I used CVS.

Im no longer on medications because after a few months they no longer worked for me and cause terrible withdrawal side effects when stopping these kind of medications. Don’t eat before taking your medications and don’t take with coffee, maybe waite a half hour after coffee and don’t take with any kind of juice or milk or anything with acid or vitamin C.  To be safe take with water and don’t eat anything for a few hours after meds. My body is highly acidic so I would take a tums or rolaids or baking soda and water to tame the high acidity and wait about 15-30 minutes then take your medications (only recommended for people with high acidity). Best of luck

Posted by BexIssues on Dec 26, 2013 at 5:55pm

also I took 20mg of Adderall twice a day for about $40.00 so shop around each month for the best price, and no wallmart or your just buying sugar pills, garbage

Posted by BexIssues on Dec 26, 2013 at 5:57pm

Are you sure they government doesn’t allow discount cards for controlled substances?  I’d want to see the specific law on that. There have been so many changes over the past few years.  I have found my own insurance plan gives out contradictory information due to ignorance. There are many details related to prescriptions that make a difference. I’ve been told I can only get a 30 day supply only because the pharmacy didn’t realize I can get a 90 day if the Rx is for a Code B (meaning ADHD).

Posted by Juggler on Dec 26, 2013 at 11:07pm

Your story is almost identical to mine.

Diagnosed at age 6, put on Ritalin and taken off because of the headaches. Diagnosed again at 10, put on Adderall, quit taking it after a few months, well that was 14 years ago. Up until last year, I didn’t even know what adhd meant. I knew I was different, but I didn’t know why, and I knew I had been diagnosed with adhd as a kid, but I knew nothing about it, and never even considered it, I just thought it explained my uncontrollable hyperactivity as a child. Last year I started researching adhd, and it was like an epiphany. It was definitely that “A-ha” moment many of us have. Anyway, I still have not gotten treatment because of finances, and I’m getting ready to take Boards, and begin my career, but I’m scared. I can’t go through 15 more jobs in 5 years again….I plan on going to the doc soon…hopefully…Have you talked to your doc about switching meds? I’ve read that there is a small percentage of people that won’t feel the effects of stimulants…idk, good luck, keep trying.

Posted by Runningw/shears on Dec 27, 2013 at 1:41am

Many ADHD medication manufacturers offer a discount card. Some are good for a full year to get the medication at a fixed price. Look up the websites of the different manufacturers for details on their offer and how to request the discount card.

Here’s prescription assistance for Concerta for example: http://www.janssenprescriptionassistance.com/?referrer=http://www.access2wellness.com

Here’s patient assistance for Ritalin: http://www.patientassistancenow.com/index.jsp?usertrack.filter_applied=true&NovaId=2935376964241040736

Quillivant has a $20 copay card: https://www.quillivantxr.com/co-pay-card.

Work with your doctor to find out what will be beneficial that you can also afford. Adding stress to your life in relation to the cost of medication is only going to make your ADD worse.

Penny
ADDconnect Moderator & Mom to Tween Boy with ADHD and LDs

Posted by adhdmomma on Dec 27, 2013 at 2:49am

as far as the pharmacy goes, its sort of a complicated scenario, but here goes

when my doc first put me on the ritalin (a few months ago not when i was a kid) she set me up on the slow release with the option for the instant release based wich ever was the cheapest… i took the prescription to city market (same as king supers) and the gal told me they had it in stock and it would be like $45 but said they couldnt accept my discount card becuase the card is set up to go thru the pharmacy at Safeway…. so then i went to safeway, turned in my slip, and the lady comes back and says the slow release tablets are backordered and had been for almost 6months, so i asked about the instant release, and she said they had em in stock… well as my normal luck would have it, she couldnt fill the prescription becuase my doc VERBALLY told me about the instant release pills and didnt write it on the prescription. so now i had to call back to the clinic wich by this time its now 10 minutes after 5 on a friday… had to wait all wkend, then called and had her write a new prescription for the instant release, went back to safeway, and after the guy looked it up he told me it was going to be 80 some odd dollars becuase of a recent change, (in something idk if state, or government, or what ever) the discount card doesnt cover controlled substances… i said to hell with that i can get it at city market for 45… so had the doc fill me out ANOTHER prescription for the original order… went to city market, filled the presciption and when i went to pay for it, it was about $75 dollars, of coarse being told 3 days prior that it was 30 bucks cheaper, i brought that up, the gal searched and searched and searched that lttle computor and never could figure out how the $45 ever came to be… so i was forced to pay the 75

Posted by Stebs on Dec 27, 2013 at 4:10am

i definatly agree runningwsheers, definatly a simular situation, and like u, i cant keep going thru jobs, i want to start my career with out fear of the future

i will look into those sites adhdmomma, thanks

Posted by Stebs on Dec 27, 2013 at 4:14am

i was in the process of looking up the whole discount card/controlled drugs… and it just dawned on me the name of the prescription she wrote me for

methylphenidate

Posted by Stebs on Dec 27, 2013 at 4:44am

just made a few calls, called walgreens (not sure if the guy was giving me the right info or not) and the pharmasist gave me a cash price with no insurance for 20mg methyphenidate x30… he gave me 3 different prices, $39.70, $48, and $73

im not sure what the 39 and 48 are for becuase my doc explained to me that its either slow release or instant release, slow release lasting most the day, and instant release taking twice a day… well he was trying to tell me its either slow release or extended release and theres no such thing as instant releaase… so idk which price is wich cuz he kept switching up his answers… the $73 however is for a 1 month supply (30 pills of Ritalin)

so then i called safeway in the next town (ours closed a few months ago) to get a price aswell as some info on the whole discount denial for my meds… theyre cash price for the GENERIC is $88.99 for a 1 month supply of 30 pills (keep in mind my doc doubled my dose, so double the cost)... and she said the VNA set up an exclusic discount system through the safeway pharmacies where generic drugs can be bought for around $4… well some drugs are covered, and others arnt… apparently mine is one that not covered due to being a “controlled substance” ... basicly they ( I say they not really knowing if its company regulations, or FDA regs or who ever is posing the rule) don’t want to encourage the use of narcotics, i.e. - speed…

should i talk to my doc about other options since i obviously cant afford this route?

Posted by Stebs on Dec 27, 2013 at 5:21am

Hi stebs!

Talk to your doctor about medications where the manufacturer has a patient assistance program or offers a long-term discount card, like those I provided links to above. A caring doctor will do what they can to treat your condition without adding a financial burden to do so.

Penny
ADDconnect Moderator & Mom to Tween Boy with ADHD and LDs

Posted by adhdmomma on Dec 27, 2013 at 6:00pm

I don’t know about the BS or what, but I was paying Walgreens $100+ for 90 30mg ir Adderall. Then I joined AARP. They offer a prescription card with no extra charge. My cost w/ the card at Walgreens is now $61.00.

Posted by industrius2 on Dec 27, 2013 at 11:39pm

Wellbutrin worked fantastically well for me but about a month - have you tried it?

Posted by colinhyh2 on Dec 28, 2013 at 12:26am

I also have good luck with Wellbutrin.

Also, with a medication change ask for samples or coupons to help cut the costs.  It should also be a good way to find out if you can take the drug.

I have had to throw so much medication away.  Now I ask for sample and coupons.

Posted by Alanna on Dec 30, 2013 at 11:02pm

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